About one in every thousand babies born each year has clubfoot, a
disorder that affects foot and calf muscles. Because treatment usually
begins soon after birth and continues for several years, parents play a
key role in the treatment of clubfoot and need to be able to communicate
effectively with their child's doctor. The Parents' Guide to Clubfoot
is the only book about clubfoot that is written for parents so they can
learn everything they need to know about their child's condition. It is
an all-in-one resource with medical information, advice from parents,
comments from clubfoot experts, and even an illustrated story for
preschoolers that parents can read aloud to their children.
Written in everyday language, the book covers clubfoot in babies and
older children from diagnosis through treatment for mild to severe
cases. It provides details on clubfoot, its causes, treatment and care,
along with an extensive list of resources and clubfoot assessment aids.
In keeping with currently preferred treatments in the U.S., it
emphasizes the Ponseti method, which minimizes surgery, and includes
perspectives from Ponseti-trained clubfoot doctors and parents of
children with clubfoot. However, separate chapters discuss all
pre-treatment and post-treatment care options and one chapter covers
surgery and post-surgery care if it becomes necessary.
Parents often have a hard time coping with the diagnosis of clubfoot in
their newborn children, and this book reassures them that the condition
is treatable. If treated correctly, the child's foot will look normal,
and he or she will be fully able to walk, run, and play. Several
world-class athletes, including Kristi Yamaguchi, Troy Aikman and Freddy
Sanchez, were born with clubfoot. The book includes advice from children
with clubfoot that highlights the positive effects of having clubfoot as
a child, like getting presents after surgery, and shows active pictures
of them after their treatment.
As mentioned, the Ponseti method of treatment - once disregarded as
quackery - is the most common method of clubfoot treatment in the United
States. It involves a series of casts and braces that slowly reposition
the foot. To prevent a relapse, these braces need to be worn until the
age of four or five. The book provides instruction, advice and tips for
caring for a child in a cast, putting on the different braces required
for the Ponseti method, and solving common problems like bruising. It
also includes a useful list of signs that a child's foot is relapsing.
The three most important aspects of the book are:
- It reassures parents that clubfoot is treatable and that, with the
right treatment, their child's foot will look normal and he or she will
be able to walk, run, and play.
- It is important to find a doctor skilled in treating clubfoot with a
nonsurgical approach. This is called the Ponseti method after the late
Dr. Ponseti, who developed it.
- Once a child's foot is corrected, following through with brace wear
as directed until the age of four or five is the best way to prevent a
relapse in which the foot needs to be corrected again.