A moving memoir from the mother of a child with Treacher Collins
Syndrome, with a foreword by R.J. Palacio, author of Wonder
For Magda Newman, normal was a goal--she wanted her son Nathaniel to
be able to play on the playground, swim at the beach, enjoy the moments
of childhood that are often taken for granted. But Nathaniel's severe
Treacher Collins syndrome--a craniofacial condition--meant that other
concerns came first. Could he eat without the aid of a gastrointestinal
tube? Could he hear? Would he ever be able to breathe effortlessly?
In this moving memoir, Newman, with the help of her son, tells the story
of raising Nathaniel, from the shock she and her husband faced when he
was born, to the inspiration of Nathaniel's own strength and quirky
humor. All this while also facing both non-Hodgkins and Hodgkins
lymphoma diagnoses of her own. This uplifting story of a family tackling
complex and terrifying circumstances with love and resilience is a true
testament to Magda and her family, and to families everywhere who
quietly but courageously persist.