This collection of twelve life stories delves into the experiences of
families of Hansen's Disease (Leprosy) patients who tell their own
stories in their own words. In detailed interviews spanning more than
ten years, Ai Kurosaka presents their struggles from the previously
neglected perspective of family members of patients. The storytellers
tell how they were torn by experiences of separation, discrimination and
broken relationships.
Like fugitives, many spent years hiding the truth and deceiving others
to protect themselves and their families, and they reveal how this
affected their relationships with others, but also with themselves.
These recollections reveal agony and repentance, but are also stories of
resilience that show the courage of the storytellers in speaking up and
in challenging the government's policy on Hansen's Disease. This book
breaks the silence of families of Hansen's Disease patients and seeks to
restore relationships for families of patients and the wider society.