This volume presents the ethical implications of risk information as
related to genetics and other health data for policy decisions at
clinical, research and societal levels.
Ethical, Social and Psychological Impacts of Genomic Risk Communication
examines the introduction of new types of health risk information based
on faster, cheaper and larger sets of genetic or genomic analysis.
Synthesizing the results of a five-year interdisciplinary project, it
explores the unsolved ethical and social questions around the sharing of
this data, such as: What is best practice in risk communication? What
are the normative presumptions and ethical consequences of an increased
individual responsibility for ones' health? And how does one deal with
the gap between the knowledge of risk and the lack of therapeutic
options which often exist for complex diseases, such as dementia or some
types of cancer? Drawing on contributions from over 20 experts in the
field, this collection examines these questions from a liberal
bioethics' perspective, advocating for contextual and cultural-sensitive
ethical discussions.
This book will be of great interest to students and scholars of
theoretical and clinical medical ethics, medical sociology, risk
communication and ethics of risk, as well as professionals in clinical
genetics.