Julie M Hauer

(Author)

Caring for Children Who Have Severe Neurological Impairment: A Life with GracePaperback, 1 August 2013

Caring for Children Who Have Severe Neurological Impairment: A Life with Grace
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Reading Age
Ages: 18
Grade Levels
13
Part of Series
Johns Hopkins Press Health Books (Paperback)
Print Length
480 pages
Language
English
Publisher
Johns Hopkins University Press
Date Published
1 Aug 2013
ISBN-10
1421409372
ISBN-13
9781421409375

Description

An expert physician empowers parents to make informed decisions about their child's care.

Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child's best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills.

In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.

Parents and other caregivers will find this book to be indispensable--as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.

Product Details

Audience:
Ages: 18
Author:
Julie M Hauer
Book Format:
Paperback
Country of Origin:
US
Date Published:
1 August 2013
Dimensions:
23.11 x 15.49 x 3.05 cm
Educational Level:
Grade Levels: 13
Genre:
Health & Fitness
ISBN-10:
1421409372
ISBN-13:
9781421409375
Language:
English
Location:
Baltimore
Pages:
480
Weight:
703.07 gm

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